A media article was published about unauthorized access to NIH-supported data by individuals who have misused the data to promote an unethical agenda. The ABCD Study is named. No personally identifiable information was compromised, and there has been no data breach. The misuses and misrepresentation of the data are fundamentally inconsistent with the study’s goals, methods, and values. ABCD is designed to advance rigorous and ethical research and opposes discriminatory, stigmatizing, or harmful uses of the data. We are deeply sorry for the distress this has caused and will be reaching out to participants, the public, and the scientific community in the coming days and weeks.
Read more: Responsible use of population neuroscience data in ABCD
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Click here to view a detailed schematic of the Data Release Schedule. Each data release contains data on the full participant cohort. Click here to view a schematic of the assessment protocol. For more information about the neuroimaging protocol, please visit the Imaging Protocols page.
Click here for the NBDC Data Hub, here for the ABCD Documentation site and here for the DEAP Documentation site.
New NIH Security Requirements for Controlled Access Data
NIH expects that Approved Users of NIH controlled-access data comply with NIH Security Best Practices for Users of Controlled-Access Data and maintain such data on institutional IT systems, cloud service providers, and/or third-party IT systems with security standards that meet or exceed NIST SP 800-171 or the equivalent ISO/IEC 27001/27002 standards. Please see this summary for detailed information as it pertains to the new NIH Brain Development Cohorts Data Sharing Platform.
This NIH webinar provides an overview of NIST security requirements: https://sharing.nih.gov/genomic-data-sharing-policy/resources/learning?policy=GDS. Note: the presenters refer to genomic data but the policy has since been amended to include all NIH controlled access data.

